Legislative Efforts

Bills And Resolutions

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Senate Bill 194

Relating To: Relating to: newborn screening for Krabbe disease and requiring evaluation of additional lysosomal storage disorders for mandatory screening. (FE)
Bill Text and History
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Lobbying Principals

Principal Name Notified Date Communication Date Comments Supporting Documentation  
Wisconsin Academy of Family Physicians Notified Date 3/22/2021 Communication Date N/A Comments   Supporting Documentation  
Against
Report Date
3/22/2021

Comments
WAFP appreciates of the bill's intent to address Krabbe disease. However, newborn screening requirements should be determined by the Newborn Screening Advisory Committee at DHS rather than legislation.
Wisconsin Chapter of the American Academy of Pediatrics (WIAAP) Notified Date 3/15/2021 Communication Date N/A Comments   Supporting Documentation  
Against
Report Date
3/15/2021

Comments
Additions and deletions of tests for the newborn screening panel should be handled by the DHS Newborn Screening Advisory Committee. Addition and deletion of tests to the NBS panel should not be decided through direct legislative action.
Supporting Documentation
20210315_2021 March 12 Addition and Deletion of Tests from the Wisconsin Newborn Screening Program WIAAP Policy Statement.pdf

Wisconsin Hospital Association Notified Date 3/17/2021 Communication Date N/A Comments   Supporting Documentation  
Against
Report Date
3/17/2021

Wisconsin Medical Society Notified Date 3/18/2021 Communication Date N/A Comments   Supporting Documentation  
Against
Report Date
3/18/2021

Comments
The current system for reviewing required newborn screening tests is appropriate.

Lobbying Efforts

  2021
January - June
2021
July - December
2022
January - June
2022
July - December
Total
Total Hours Of Effort On This Matter 2021
January - June
13.00
2021
July - December
2.00
2022
January - June
2022
July - December
Total 15.00
Wisconsin Chapter of the American Academy of Pediatrics (WIAAP) 2021
January - June
13.00
2021
July - December
2.00
2022
January - June
2022
July - December
Total 15.00