The ALS Association
Registered Principal Details
Cessation Date
6/23/2025 2:43:57 PM
Business Or Interest:
Health Care, Clinical Practitioners, Researchers, Occupational Therapists, Physical Therapists
Lobbying Interests:
Health Care Access and Affordability, Prior Authorization Reform, Prescription Drug Coverage and Affordability, State Appropriations for ALS Clinics and Programs
6/23/2025 2:43:57 PM
Business Or Interest:
Health Care, Clinical Practitioners, Researchers, Occupational Therapists, Physical Therapists
Lobbying Interests:
Health Care Access and Affordability, Prior Authorization Reform, Prescription Drug Coverage and Affordability, State Appropriations for ALS Clinics and Programs
Contact
SS
Sarah Sanchez
1300 Wilson Boulevard, Suite 600
Arlington, VA 22209
(703) 684-1110
compliance_WI_als@multistate.us
1300 Wilson Boulevard, Suite 600
Arlington, VA 22209
(703) 684-1110
compliance_WI_als@multistate.us
Authorized Lobbyists
| Lobbyist Name | Exclusive Duties | Authorized On | Withdrawn On |
|---|
Lobbying Interests
Legislative Bills/Resolutions
Assembly Bill 23
Relating to: establishment of a Palliative Care Council. (FE)
Bill Text and History
3/3/2025
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Relating to: establishment of a Palliative Care Council. (FE)
Bill Text and History
For
Notification Date3/3/2025
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Assembly Bill 173
Relating to: regulation of pharmacy benefit managers, fiduciary and disclosure requirements on pharmacy benefit managers, and application of prescription drug payments to health insurance cost-sharing requirements. (FE)
Bill Text and History
6/2/2025
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Relating to: regulation of pharmacy benefit managers, fiduciary and disclosure requirements on pharmacy benefit managers, and application of prescription drug payments to health insurance cost-sharing requirements. (FE)
Bill Text and History
For
Notification Date6/2/2025
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Senate Bill 39
Relating to: establishment of a Palliative Care Council. (FE)
Bill Text and History
3/3/2025
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Relating to: establishment of a Palliative Care Council. (FE)
Bill Text and History
For
Notification Date3/3/2025
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Senate Bill 203
Relating to: regulation of pharmacy benefit managers, fiduciary and disclosure requirements on pharmacy benefit managers, and application of prescription drug payments to health insurance cost-sharing requirements. (FE)
Bill Text and History
6/2/2025
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Relating to: regulation of pharmacy benefit managers, fiduciary and disclosure requirements on pharmacy benefit managers, and application of prescription drug payments to health insurance cost-sharing requirements. (FE)
Bill Text and History
For
Notification Date6/2/2025
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Budget Bill Subjects
Biennial budget bill treatment of matter relating to
Health Services: Departmentwide
Health Services: Departmentwide
Notification Date
3/3/2025
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
3/3/2025
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Biennial budget bill treatment of matter relating to
Health Services: Medicaid Services
Health Services: Medicaid Services
Notification Date
3/3/2025
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
3/3/2025
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Biennial budget bill treatment of matter relating to
Insurance: Departmentwide
Insurance: Departmentwide
Notification Date
3/3/2025
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
3/3/2025
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Topics Not Yet Assigned A Bill Or Rule Number
Development, drafting or introduction of a proposal relating to
Issues relating to health care affordability and accessibility
Issues relating to health care affordability and accessibility
Notification Date
1/24/2025
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
1/24/2025
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Development, drafting or introduction of a proposal relating to
Issues relating to services provided to patients with ALS
Issues relating to services provided to patients with ALS
Notification Date
1/24/2025
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
1/24/2025
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Total Lobbying Effort
| 2025 January - June |
Total | |
|---|---|---|
| Total Lobbying Expenditures | 2025 January - June $10,000.00 |
Total $10,000.00 |
| Total Hours Communicating | 2025 January - June 4.00 |
Total 4.00 |
| Total Hours Other | 2025 January - June 8.00 |
Total 8.00 |
Percent Allocation of Lobbying Effort
Legislative Bills/Resolutions
Relating to: establishment of a Palliative Care Council. (FE)
| 2025 January - June |
2025 July - December |
2026 January - June |
2026 July - December |
Total |
|---|---|---|---|---|
| 2025 January - June 30% |
2025 July - December |
2026 January - June |
2026 July - December |
Total 33% |
Relating to: establishment of a Palliative Care Council. (FE)
| 2025 January - June |
2025 July - December |
2026 January - June |
2026 July - December |
Total |
|---|---|---|---|---|
| 2025 January - June 30% |
2025 July - December |
2026 January - June |
2026 July - December |
Total 33% |
Budget Bill Subjects
No budget bill subjects found.
Administrative Rulemaking Proceedings
No administrative rulemaking proceedings found.
Topics Not Yet Assigned A Bill Or Rule Number
| 2025 January - June |
2025 July - December |
2026 January - June |
2026 July - December |
Total |
|---|---|---|---|---|
| 2025 January - June 40% |
2025 July - December |
2026 January - June |
2026 July - December |
Total 40% |
Minor Efforts
No minor efforts found.
Other Matters
No other matters found.