The ALS Association
Registered Principal Details
Business Or Interest:
The ALS Association is a 501(c)(3) organization funded by charitable donations and grants.
Lobbying Interests:
The ALS Association intends to lobby on areas related to funding for direct patient services, healthcare eligibility for services, insurance-related issues, and taxation related to medical supplies.
The ALS Association is a 501(c)(3) organization funded by charitable donations and grants.
Lobbying Interests:
The ALS Association intends to lobby on areas related to funding for direct patient services, healthcare eligibility for services, insurance-related issues, and taxation related to medical supplies.
Contact
SS
Sarah Sanchez
1919 University Avenue West, Suite 175
St. Paul, MN 55104
612-991-7398
sarah.sanchez@als.org
1919 University Avenue West, Suite 175
St. Paul, MN 55104
612-991-7398
sarah.sanchez@als.org
Authorized Lobbyists
| Lobbyist Name | Exclusive Duties | Authorized On | Withdrawn On |
|---|
Lobbying Interests
Legislative Bills/Resolutions
Assembly Bill 416
Relating to: repair of complex rehabilitation technology under the Medical Assistance program. (FE)
Bill Text and History
9/20/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Relating to: repair of complex rehabilitation technology under the Medical Assistance program. (FE)
Bill Text and History
For
Notification Date9/20/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Assembly Bill 736
Relating to: establishing a Palliative Care Council. (FE)
Bill Text and History
1/10/2024
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Relating to: establishing a Palliative Care Council. (FE)
Bill Text and History
For
Notification Date1/10/2024
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Senate Bill 100
Relating to: application of prescription drug payments to health insurance cost-sharing requirements.
Bill Text and History
3/13/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Relating to: application of prescription drug payments to health insurance cost-sharing requirements.
Bill Text and History
For
Notification Date3/13/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Senate Bill 434
Relating to: repair of complex rehabilitation technology under the Medical Assistance program. (FE)
Bill Text and History
2023 Wisconsin Act 83
9/25/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Relating to: repair of complex rehabilitation technology under the Medical Assistance program. (FE)
Bill Text and History
2023 Wisconsin Act 83
For
Notification Date9/25/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Senate Bill 703
Relating to: establishing a Palliative Care Council. (FE)
Bill Text and History
1/10/2024
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Relating to: establishing a Palliative Care Council. (FE)
Bill Text and History
For
Notification Date1/10/2024
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Senate Bill 737
Relating to: regulation of pharmacy benefit managers, fiduciary and disclosure requirements on pharmacy benefit managers, and application of prescription drug payments to health insurance cost-sharing requirements. (FE)
Bill Text and History
12/8/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Relating to: regulation of pharmacy benefit managers, fiduciary and disclosure requirements on pharmacy benefit managers, and application of prescription drug payments to health insurance cost-sharing requirements. (FE)
Bill Text and History
For
Notification Date12/8/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Budget Bill Subjects
Biennial budget bill treatment of matter relating to
Health Services: Departmentwide
Health Services: Departmentwide
Notification Date
2/27/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
2/27/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Topics Not Yet Assigned A Bill Or Rule Number
Development, drafting or introduction of a proposal relating to
Issues related to coverage of treatment, services, and medical supplies for ALS patients
Issues related to coverage of treatment, services, and medical supplies for ALS patients
Action Intended To Affect
Both Legislative matter and rule
Notification Date
1/25/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Both Legislative matter and rule
Notification Date
1/25/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Development, drafting or introduction of a proposal relating to
Issues related to state funding for ALS patient support services
Issues related to state funding for ALS patient support services
Action Intended To Affect
Both Legislative matter and rule
Notification Date
1/25/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Both Legislative matter and rule
Notification Date
1/25/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Total Lobbying Effort
| 2023 January - June |
2023 July - December |
2024 January - June |
Total | |
|---|---|---|---|---|
| Total Lobbying Expenditures | 2023 January - June $15,000.00 |
2023 July - December $15,000.00 |
2024 January - June $15,000.00 |
Total $45,000.00 |
| Total Hours Communicating | 2023 January - June 12.75 |
2023 July - December 1.50 |
2024 January - June 2.50 |
Total 16.75 |
| Total Hours Other | 2023 January - June 22.75 |
2023 July - December 33.50 |
2024 January - June 21.50 |
Total 77.75 |
Percent Allocation of Lobbying Effort
Legislative Bills/Resolutions
Relating to: application of prescription drug payments to health insurance cost-sharing requirements.
| 2023 January - June |
2023 July - December |
2024 January - June |
2024 July - December |
Total |
|---|---|---|---|---|
| 2023 January - June 50% |
2023 July - December 20% |
2024 January - June |
2024 July - December |
Total 26% |
Relating to: establishing a Palliative Care Council. (FE)
| 2023 January - June |
2023 July - December |
2024 January - June |
2024 July - December |
Total |
|---|---|---|---|---|
| 2023 January - June |
2023 July - December 5% |
2024 January - June 10% |
2024 July - December |
Total 4% |
Relating to: establishing a Palliative Care Council. (FE)
| 2023 January - June |
2023 July - December |
2024 January - June |
2024 July - December |
Total |
|---|---|---|---|---|
| 2023 January - June |
2023 July - December 5% |
2024 January - June 10% |
2024 July - December |
Total 4% |
Relating to: repair of complex rehabilitation technology under the Medical Assistance program. (FE)
| 2023 January - June |
2023 July - December |
2024 January - June |
2024 July - December |
Total |
|---|---|---|---|---|
| 2023 January - June |
2023 July - December 20% |
2024 January - June |
2024 July - December |
Total 7% |
Relating to: repair of complex rehabilitation technology under the Medical Assistance program. (FE)
| 2023 January - June |
2023 July - December |
2024 January - June |
2024 July - December |
Total |
|---|---|---|---|---|
| 2023 January - June |
2023 July - December 20% |
2024 January - June |
2024 July - December |
Total 7% |
Relating to: regulation of pharmacy benefit managers, fiduciary and disclosure requirements on pharmacy benefit managers, and application of prescription drug payments to health insurance cost-sharing requirements. (FE)
| 2023 January - June |
2023 July - December |
2024 January - June |
2024 July - December |
Total |
|---|---|---|---|---|
| 2023 January - June |
2023 July - December 30% |
2024 January - June 80% |
2024 July - December |
Total 32% |
Budget Bill Subjects
| 2023 January - June |
2023 July - December |
2024 January - June |
2024 July - December |
Total |
|---|---|---|---|---|
| 2023 January - June 30% |
2023 July - December |
2024 January - June |
2024 July - December |
Total 12% |
Administrative Rulemaking Proceedings
No administrative rulemaking proceedings found.
Topics Not Yet Assigned A Bill Or Rule Number
| 2023 January - June |
2023 July - December |
2024 January - June |
2024 July - December |
Total |
|---|---|---|---|---|
| 2023 January - June 10% |
2023 July - December |
2024 January - June |
2024 July - December |
Total 4% |
| 2023 January - June |
2023 July - December |
2024 January - June |
2024 July - December |
Total |
|---|---|---|---|---|
| 2023 January - June 10% |
2023 July - December |
2024 January - June |
2024 July - December |
Total 4% |
Minor Efforts
No minor efforts found.
Other Matters
No other matters found.