Cystic Fibrosis Foundation

Registered Principal Details

Business Or Interest:
We are a donor-funded, 501(c)(3) nonprofit that is fully accredited by the Better Business Bureau's (BBB) Wise Giving Alliance program.

Lobbying Interests:
All matters relating to research, care, and support for people with cystic fibrosis and their families including issues such as Medicaid, Drug Formularies, Chronic Disease Program, Newborn Screening, Insurance, and Organ Donation.

Title:
State Policy Specialist

Contact
MP
Meghan Pudeler
4550 Montgomery Avenue, Suite 1100N
Bethesda, MD 20814
(240) 482-2872
mpudeler@cff.org

Authorized Lobbyists

Lobbyist Name Exclusive Duties Authorized On Withdrawn On
Ramie Zelenkova Exclusive Duties N/A Authorized On 1/23/2018 Withdrawn On N/A
Katie White Exclusive Duties N/A Authorized On 1/23/2018 Withdrawn On N/A

Lobbying Interests

Legislative Bills/Resolutions

Assembly Bill 365
Assembly Bill 365
Relating to: prohibiting lifetime and annual limits under health insurance policies and plans. (FE)

Bill Text and History

None
Notification Date
2/1/2018
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal do not intend to communicate on this matter.

Total Lobbying Effort

  2018
January - June
2018
July - December
Total
Total Lobbying Expenditures 2018
January - June
$12,500.00
2018
July - December
$15,000.00
Total $27,500.00
Total Hours Communicating 2018
January - June
8.50
2018
July - December
6.00
Total 14.50
Total Hours Other 2018
January - June
31.25
2018
July - December
22.00
Total 53.25

Percent Allocation of Lobbying Effort

Legislative Bills/Resolutions

Relating to: prohibiting lifetime and annual limits under health insurance policies and plans. (FE)
2017
January - June
2017
July - December
2018
January - June
2018
July - December
Total
2017
January - June
2017
July - December
2018
January - June
50%
2018
July - December
70%
Total 59%

Budget Bill Subjects

No budget bill subjects found.

Administrative Rulemaking Proceedings

No administrative rulemaking proceedings found.

Topics Not Yet Assigned A Bill Or Rule Number

No topics found.

Minor Efforts

(Time spent on matters each of which accounted for less than 10% of the organization's lobbying.)

Minor Efforts
2017
January - June
2017
July - December
2018
January - June
2018
July - December
Total
2017
January - June
2017
July - December
2018
January - June
10%
2018
July - December
10%
Total 10%

Other Matters

Includes time spent on:

  • Gubernatorial nominations
  • Matters on which the organization made no lobbying communication

Other Matters
2017
January - June
2017
July - December
2018
January - June
2018
July - December
Total
2017
January - June
2017
July - December
2018
January - June
40%
2018
July - December
20%
Total 32%

Filed Statements of Lobbying Activity and Expenditures