Cystic Fibrosis Foundation

Registered Principal Details

Business Or Interest:
We are a donor-funded, 501(c)(3) nonprofit that is fully accredited by the Better Business Bureau's (BBB) Wise Giving Alliance program.

Lobbying Interests:
All matters relating to research, care, and support for people with cystic fibrosis and their families including issues such as Medicaid, Drug Formularies, Chronic Disease Program, Newborn Screening, Insurance, and Organ Donation.

Title:
State Policy Specialist

Contact
BM
Beryl Manske
4550 Montgomery Avenue, Suite 1100N
Bethesda, MD 20814
(301) 841-2632
bmanske@cff.org

Authorized Lobbyists

Lobbyist Name Exclusive Duties Authorized On Withdrawn On

Lobbying Interests

Legislative Bills/Resolutions

Assembly Bill 103
Assembly Bill 103
Relating to: application of prescription drug payments to health insurance cost-sharing requirements.

Bill Text and History

For
Notification Date
3/16/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Assembly Bill 148
Assembly Bill 148
Relating to: disenrollment of ineligible individuals from and redeterminations of eligibility for the BadgerCare Plus program and database confirmation for public assistance program eligibility. (FE)

Bill Text and History

Against
Notification Date
4/11/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Senate Bill 100
Senate Bill 100
Relating to: application of prescription drug payments to health insurance cost-sharing requirements.

Bill Text and History

For
Notification Date
3/16/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Senate Bill 737
Senate Bill 737
Relating to: regulation of pharmacy benefit managers, fiduciary and disclosure requirements on pharmacy benefit managers, and application of prescription drug payments to health insurance cost-sharing requirements. (FE)

Bill Text and History

For
Notification Date
12/8/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.

Budget Bill Subjects

Health and Educational Facilities Authority
Biennial budget bill treatment of matter relating to
Health and Educational Facilities Authority

Notification Date
3/1/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.

Health Services: Departmentwide
Biennial budget bill treatment of matter relating to
Health Services: Departmentwide

Notification Date
3/1/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.

Health Services: Medicaid Services
Biennial budget bill treatment of matter relating to
Health Services: Medicaid Services

Notification Date
3/1/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.

Health Services: Mental Health and Developmental Disabilities Services; Facilities
Biennial budget bill treatment of matter relating to
Health Services: Mental Health and Developmental Disabilities Services; Facilities

Notification Date
3/1/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.

Health Services: Quality Assurance Services Planning, Regulation and Delivery
Biennial budget bill treatment of matter relating to
Health Services: Quality Assurance Services Planning, Regulation and Delivery

Notification Date
3/1/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.

Total Lobbying Effort

  2023
January - June
2023
July - December
Total
Total Lobbying Expenditures 2023
January - June
$15,655.00
2023
July - December
$15,000.00
Total $30,655.00
Total Hours Communicating 2023
January - June
3.00
2023
July - December
5.50
Total 8.50
Total Hours Other 2023
January - June
26.00
2023
July - December
15.00
Total 41.00

Percent Allocation of Lobbying Effort

Legislative Bills/Resolutions

Relating to: application of prescription drug payments to health insurance cost-sharing requirements.
2023
January - June
2023
July - December
2024
January - June
2024
July - December
Total
2023
January - June
25%
2023
July - December
25%
2024
January - June
2024
July - December
Total 24%
Relating to: application of prescription drug payments to health insurance cost-sharing requirements.
2023
January - June
2023
July - December
2024
January - June
2024
July - December
Total
2023
January - June
25%
2023
July - December
25%
2024
January - June
2024
July - December
Total 24%
Relating to: regulation of pharmacy benefit managers, fiduciary and disclosure requirements on pharmacy benefit managers, and application of prescription drug payments to health insurance cost-sharing requirements. (FE)
2023
January - June
2023
July - December
2024
January - June
2024
July - December
Total
2023
January - June
2023
July - December
50%
2024
January - June
2024
July - December
Total 20%

Budget Bill Subjects

2023
January - June
2023
July - December
2024
January - June
2024
July - December
Total
2023
January - June
25%
2023
July - December
2024
January - June
2024
July - December
Total 14%
2023
January - June
2023
July - December
2024
January - June
2024
July - December
Total
2023
January - June
25%
2023
July - December
2024
January - June
2024
July - December
Total 14%

Administrative Rulemaking Proceedings

No administrative rulemaking proceedings found.

Topics Not Yet Assigned A Bill Or Rule Number

No topics found.

Minor Efforts

No minor efforts found.

Other Matters

No other matters found.

Filed Statements of Lobbying Activity and Expenditures