Cystic Fibrosis Foundation

Registered Principal Details

Business Or Interest:
We are a donor-funded, 501(c)(3) nonprofit that is fully accredited by the Better Business Bureau's (BBB) Wise Giving Alliance program.

Lobbying Interests:
All matters relating to research, care, and support for people with cystic fibrosis and their families including issues such as Medicaid, Drug Formularies, Chronic Disease Program, Newborn Screening, Insurance, and Organ Donation.

Contact
AK
Adam Kellermann
4550 Montgomery Avenue, Suite 1100N
Bethesda, MD 20814
(240) 482-2872
akellermann@cff.org

Authorized Lobbyists

Lobbyist Name Exclusive Duties Authorized On Withdrawn On
Ramie Zelenkova Exclusive Duties No Authorized On 1/4/2021 Withdrawn On N/A
Katie White Exclusive Duties No Authorized On 1/4/2021 Withdrawn On N/A

Lobbying Interests

Legislative Bills/Resolutions

Assembly Bill 184
Assembly Bill 184
Relating to: application of prescription drug payments to health insurance cost-sharing requirements.

Bill Text and History

For
Notification Date
2/15/2022
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal do not intend to communicate on this matter.

Budget Bill Subjects

Health Services: Medicaid Services
Biennial budget bill treatment of matter relating to
Health Services: Medicaid Services

Notification Date
2/17/2021
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal do not intend to communicate on this matter.

Insurance: Departmentwide
Biennial budget bill treatment of matter relating to
Insurance: Departmentwide

Notification Date
2/17/2021
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal do not intend to communicate on this matter.

Total Lobbying Effort

  2021
January - June
2021
July - December
Total
Total Lobbying Expenditures 2021
January - June
$15,625.00
2021
July - December
$15,000.00
Total $30,625.00
Total Hours Communicating 2021
January - June
1.00
2021
July - December
0.50
Total 1.50
Total Hours Other 2021
January - June
32.00
2021
July - December
10.50
Total 42.50

Percent Allocation of Lobbying Effort

Legislative Bills/Resolutions

No legislative bills/resolutions found.

Budget Bill Subjects

2021
January - June
2021
July - December
2022
January - June
2022
July - December
Total
2021
January - June
10 %
2021
July - December
2022
January - June
2022
July - December
Total 7 %
2021
January - June
2021
July - December
2022
January - June
2022
July - December
Total
2021
January - June
70 %
2021
July - December
2022
January - June
2022
July - December
Total 52 %

Administrative Rulemaking Proceedings

No administrative rulemaking proceedings found.

Topics Not Yet Assigned A Bill Or Rule Number

No topics found.

Minor Efforts

(Time spent on matters each of which accounted for less than 10% of the organization's lobbying.)

Minor Efforts
2021
January - June
2021
July - December
2022
January - June
2022
July - December
Total
2021
January - June
10 %
2021
July - December
10 %
2022
January - June
2022
July - December
Total 10 %

Other Matters

Includes time spent on:

  • Gubernatorial nominations
  • Matters on which the organization made no lobbying communication

Other Matters
2021
January - June
2021
July - December
2022
January - June
2022
July - December
Total
2021
January - June
10 %
2021
July - December
90 %
2022
January - June
2022
July - December
Total 30 %

Filed Statements of Lobbying Activity and Expenditures