Cystic Fibrosis Foundation
Registered Principal Details
Business Or Interest:
We are a donor-funded, 501(c)(3) nonprofit that is fully accredited by the Better Business Bureau's (BBB) Wise Giving Alliance program.
Lobbying Interests:
All matters relating to research, care, and support for people with cystic fibrosis and their families including issues such as Medicaid, Drug Formularies, Chronic Disease Program, Newborn Screening, Insurance, and Organ Donation.
We are a donor-funded, 501(c)(3) nonprofit that is fully accredited by the Better Business Bureau's (BBB) Wise Giving Alliance program.
Lobbying Interests:
All matters relating to research, care, and support for people with cystic fibrosis and their families including issues such as Medicaid, Drug Formularies, Chronic Disease Program, Newborn Screening, Insurance, and Organ Donation.
Contact
AK
Adam Kellermann
4550 Montgomery Avenue, Suite 1100N
Bethesda, MD 20814
(240) 482-2872
akellermann@cff.org
4550 Montgomery Avenue, Suite 1100N
Bethesda, MD 20814
(240) 482-2872
akellermann@cff.org
Authorized Lobbyists
| Lobbyist Name | Exclusive Duties | Authorized On | Withdrawn On |
|---|---|---|---|
| Ramie Zelenkova | Exclusive Duties No | Authorized On 1/4/2021 | Withdrawn On N/A |
| Katie White | Exclusive Duties No | Authorized On 1/4/2021 | Withdrawn On N/A |
Lobbying Interests
Legislative Bills/Resolutions
Assembly Bill 184
Relating to: application of prescription drug payments to health insurance cost-sharing requirements.
Bill Text and History
2/15/2022
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal do not intend to communicate on this matter.
Relating to: application of prescription drug payments to health insurance cost-sharing requirements.
Bill Text and History
For
Notification Date2/15/2022
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal do not intend to communicate on this matter.
Budget Bill Subjects
Biennial budget bill treatment of matter relating to
Health Services: Medicaid Services
Health Services: Medicaid Services
Notification Date
2/17/2021
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal do not intend to communicate on this matter.
2/17/2021
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal do not intend to communicate on this matter.
Biennial budget bill treatment of matter relating to
Insurance: Departmentwide
Insurance: Departmentwide
Notification Date
2/17/2021
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal do not intend to communicate on this matter.
2/17/2021
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal do not intend to communicate on this matter.
Total Lobbying Effort
| 2021 January - June |
2021 July - December |
2022 January - June |
2022 July - December |
Total | |
|---|---|---|---|---|---|
| Total Lobbying Expenditures | 2021 January - June $15,625.00 |
2021 July - December $15,000.00 |
2022 January - June $15,000.00 |
2022 July - December $15,000.00 |
Total $60,625.00 |
| Total Hours Communicating | 2021 January - June 1.00 |
2021 July - December 0.50 |
2022 January - June 0.00 |
2022 July - December 1.75 |
Total 3.25 |
| Total Hours Other | 2021 January - June 32.00 |
2021 July - December 10.50 |
2022 January - June 17.50 |
2022 July - December 8.00 |
Total 68.00 |
Percent Allocation of Lobbying Effort
Legislative Bills/Resolutions
No legislative bills/resolutions found.
Budget Bill Subjects
| 2021 January - June |
2021 July - December |
2022 January - June |
2022 July - December |
Total |
|---|---|---|---|---|
| 2021 January - June 10% |
2021 July - December |
2022 January - June |
2022 July - December |
Total 4% |
| 2021 January - June |
2021 July - December |
2022 January - June |
2022 July - December |
Total |
|---|---|---|---|---|
| 2021 January - June 70% |
2021 July - December |
2022 January - June |
2022 July - December |
Total 32% |
Administrative Rulemaking Proceedings
No administrative rulemaking proceedings found.
Topics Not Yet Assigned A Bill Or Rule Number
No topics found.
Minor Efforts
(Time spent on matters each of which accounted for less than 10% of the organization's lobbying.)
Other Matters
Includes time spent on:
- Gubernatorial nominations
- Matters on which the organization made no lobbying communication