Cystic Fibrosis Foundation
Registered Principal Details
Business Or Interest:
We are a donor-funded, 501(c)(3) nonprofit that is fully accredited by the Better Business Bureau's (BBB) Wise Giving Alliance program.
Lobbying Interests:
All matters relating to research, care, and support for people with cystic fibrosis and their families including issues such as Medicaid, Drug Formularies, Chronic Disease Program, Newborn Screening, Insurance, and Organ Donation.
Title:
State Policy Specialist
We are a donor-funded, 501(c)(3) nonprofit that is fully accredited by the Better Business Bureau's (BBB) Wise Giving Alliance program.
Lobbying Interests:
All matters relating to research, care, and support for people with cystic fibrosis and their families including issues such as Medicaid, Drug Formularies, Chronic Disease Program, Newborn Screening, Insurance, and Organ Donation.
Title:
State Policy Specialist
Contact
BM
Authorized Lobbyists
| Lobbyist Name | Exclusive Duties | Authorized On | Withdrawn On |
|---|---|---|---|
| Ramie Zelenkova | Exclusive Duties No | Authorized On 12/28/2022 | Withdrawn On N/A |
| Katie White | Exclusive Duties No | Authorized On 12/28/2022 | Withdrawn On N/A |
Lobbying Interests
Legislative Bills/Resolutions
Assembly Bill 103
Relating to: application of prescription drug payments to health insurance cost-sharing requirements.
Bill Text and History
3/16/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Relating to: application of prescription drug payments to health insurance cost-sharing requirements.
Bill Text and History
For
Notification Date3/16/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Assembly Bill 148
Relating to: disenrollment of ineligible individuals from and redeterminations of eligibility for the BadgerCare Plus program and database confirmation for public assistance program eligibility. (FE)
Bill Text and History
4/11/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Relating to: disenrollment of ineligible individuals from and redeterminations of eligibility for the BadgerCare Plus program and database confirmation for public assistance program eligibility. (FE)
Bill Text and History
Against
Notification Date4/11/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Senate Bill 100
Relating to: application of prescription drug payments to health insurance cost-sharing requirements.
Bill Text and History
3/16/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Relating to: application of prescription drug payments to health insurance cost-sharing requirements.
Bill Text and History
For
Notification Date3/16/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Senate Bill 737
Relating to: regulation of pharmacy benefit managers, fiduciary and disclosure requirements on pharmacy benefit managers, and application of prescription drug payments to health insurance cost-sharing requirements. (FE)
Bill Text and History
12/8/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Relating to: regulation of pharmacy benefit managers, fiduciary and disclosure requirements on pharmacy benefit managers, and application of prescription drug payments to health insurance cost-sharing requirements. (FE)
Bill Text and History
For
Notification Date12/8/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Budget Bill Subjects
Biennial budget bill treatment of matter relating to
Health and Educational Facilities Authority
Health and Educational Facilities Authority
Notification Date
3/1/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
3/1/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Biennial budget bill treatment of matter relating to
Health Services: Departmentwide
Health Services: Departmentwide
Notification Date
3/1/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
3/1/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Biennial budget bill treatment of matter relating to
Health Services: Medicaid Services
Health Services: Medicaid Services
Notification Date
3/1/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
3/1/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Biennial budget bill treatment of matter relating to
Health Services: Mental Health and Developmental Disabilities Services; Facilities
Health Services: Mental Health and Developmental Disabilities Services; Facilities
Notification Date
3/1/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
3/1/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Biennial budget bill treatment of matter relating to
Health Services: Quality Assurance Services Planning, Regulation and Delivery
Health Services: Quality Assurance Services Planning, Regulation and Delivery
Notification Date
3/1/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
3/1/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Total Lobbying Effort
| 2023 January - June |
2023 July - December |
2024 January - June |
Total | |
|---|---|---|---|---|
| Total Lobbying Expenditures | 2023 January - June $15,655.00 |
2023 July - December $15,000.00 |
2024 January - June $15,000.00 |
Total $45,655.00 |
| Total Hours Communicating | 2023 January - June 3.00 |
2023 July - December 5.50 |
2024 January - June 3.00 |
Total 11.50 |
| Total Hours Other | 2023 January - June 26.00 |
2023 July - December 15.00 |
2024 January - June 17.25 |
Total 58.25 |
Percent Allocation of Lobbying Effort
Legislative Bills/Resolutions
Relating to: application of prescription drug payments to health insurance cost-sharing requirements.
| 2023 January - June |
2023 July - December |
2024 January - June |
2024 July - December |
Total |
|---|---|---|---|---|
| 2023 January - June 25% |
2023 July - December 25% |
2024 January - June |
2024 July - December |
Total 17% |
Relating to: application of prescription drug payments to health insurance cost-sharing requirements.
| 2023 January - June |
2023 July - December |
2024 January - June |
2024 July - December |
Total |
|---|---|---|---|---|
| 2023 January - June 25% |
2023 July - December 25% |
2024 January - June |
2024 July - December |
Total 17% |
Relating to: regulation of pharmacy benefit managers, fiduciary and disclosure requirements on pharmacy benefit managers, and application of prescription drug payments to health insurance cost-sharing requirements. (FE)
| 2023 January - June |
2023 July - December |
2024 January - June |
2024 July - December |
Total |
|---|---|---|---|---|
| 2023 January - June |
2023 July - December 50% |
2024 January - June 80% |
2024 July - December |
Total 37% |
Budget Bill Subjects
| 2023 January - June |
2023 July - December |
2024 January - June |
2024 July - December |
Total |
|---|---|---|---|---|
| 2023 January - June 25% |
2023 July - December |
2024 January - June |
2024 July - December |
Total 10% |
| 2023 January - June |
2023 July - December |
2024 January - June |
2024 July - December |
Total |
|---|---|---|---|---|
| 2023 January - June 25% |
2023 July - December |
2024 January - June 20% |
2024 July - December |
Total 16% |
Administrative Rulemaking Proceedings
No administrative rulemaking proceedings found.
Topics Not Yet Assigned A Bill Or Rule Number
No topics found.
Minor Efforts
No minor efforts found.
Other Matters
No other matters found.