The ALS Association

Registered Principal Details

Business Or Interest:
The ALS Association is a 501(c)(3) organization funded by charitable donations and grants.

Lobbying Interests:
The ALS Association intends to lobby on areas related to funding for direct patient services, healthcare eligibility for services, insurance-related issues, and taxation related to medical supplies.

Contact
SS
Sarah Sanchez
1919 University Avenue West, Suite 175
St. Paul, MN 55104
612-991-7398
sarah.sanchez@als.org

Authorized Lobbyists

Lobbyist Name Exclusive Duties Authorized On Withdrawn On
AJ Wilson Exclusive Duties No Authorized On 12/30/2022 Withdrawn On N/A
Katie White Exclusive Duties No Authorized On 1/20/2023 Withdrawn On N/A

Lobbying Interests

Legislative Bills/Resolutions

Assembly Bill 416
Assembly Bill 416
Relating to: repair of complex rehabilitation technology under the Medical Assistance program. (FE)

Bill Text and History

For
Notification Date
9/20/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Assembly Bill 736
Assembly Bill 736
Relating to: establishing a Palliative Care Council. (FE)

Bill Text and History

For
Notification Date
1/10/2024
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Senate Bill 100
Senate Bill 100
Relating to: application of prescription drug payments to health insurance cost-sharing requirements.

Bill Text and History

For
Notification Date
3/13/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Senate Bill 434
Senate Bill 434
Relating to: repair of complex rehabilitation technology under the Medical Assistance program. (FE)

Bill Text and History

2023 Wisconsin Act 83

For
Notification Date
9/25/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Senate Bill 703
Senate Bill 703
Relating to: establishing a Palliative Care Council. (FE)

Bill Text and History

For
Notification Date
1/10/2024
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.
Senate Bill 737
Senate Bill 737
Relating to: regulation of pharmacy benefit managers, fiduciary and disclosure requirements on pharmacy benefit managers, and application of prescription drug payments to health insurance cost-sharing requirements. (FE)

Bill Text and History

For
Notification Date
12/8/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.

Budget Bill Subjects

Health Services: Departmentwide
Biennial budget bill treatment of matter relating to
Health Services: Departmentwide

Notification Date
2/27/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.

Topics Not Yet Assigned A Bill Or Rule Number

Issues related to coverage of treatment, services, and medical supplies for ALS patients
Development, drafting or introduction of a proposal relating to
Issues related to coverage of treatment, services, and medical supplies for ALS patients

Action Intended To Affect
Both Legislative matter and rule

Notification Date
1/25/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.

Issues related to state funding for ALS patient support services
Development, drafting or introduction of a proposal relating to
Issues related to state funding for ALS patient support services

Action Intended To Affect
Both Legislative matter and rule

Notification Date
1/25/2023
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal has not yet communicated on this matter, but intends to do so at a later date.

Total Lobbying Effort

  2023
January - June
2023
July - December
2024
January - June
Total
Total Lobbying Expenditures 2023
January - June
$15,000.00
2023
July - December
$15,000.00
2024
January - June
$15,000.00
Total $45,000.00
Total Hours Communicating 2023
January - June
12.75
2023
July - December
1.50
2024
January - June
2.50
Total 16.75
Total Hours Other 2023
January - June
22.75
2023
July - December
33.50
2024
January - June
21.50
Total 77.75

Percent Allocation of Lobbying Effort

Legislative Bills/Resolutions

Relating to: application of prescription drug payments to health insurance cost-sharing requirements.
2023
January - June
2023
July - December
2024
January - June
2024
July - December
Total
2023
January - June
50%
2023
July - December
20%
2024
January - June
2024
July - December
Total 26%
Relating to: establishing a Palliative Care Council. (FE)
2023
January - June
2023
July - December
2024
January - June
2024
July - December
Total
2023
January - June
2023
July - December
5%
2024
January - June
10%
2024
July - December
Total 4%
Relating to: establishing a Palliative Care Council. (FE)
2023
January - June
2023
July - December
2024
January - June
2024
July - December
Total
2023
January - June
2023
July - December
5%
2024
January - June
10%
2024
July - December
Total 4%
Relating to: repair of complex rehabilitation technology under the Medical Assistance program. (FE)
2023
January - June
2023
July - December
2024
January - June
2024
July - December
Total
2023
January - June
2023
July - December
20%
2024
January - June
2024
July - December
Total 7%
Relating to: repair of complex rehabilitation technology under the Medical Assistance program. (FE)
2023
January - June
2023
July - December
2024
January - June
2024
July - December
Total
2023
January - June
2023
July - December
20%
2024
January - June
2024
July - December
Total 7%
Relating to: regulation of pharmacy benefit managers, fiduciary and disclosure requirements on pharmacy benefit managers, and application of prescription drug payments to health insurance cost-sharing requirements. (FE)
2023
January - June
2023
July - December
2024
January - June
2024
July - December
Total
2023
January - June
2023
July - December
30%
2024
January - June
80%
2024
July - December
Total 32%

Budget Bill Subjects

2023
January - June
2023
July - December
2024
January - June
2024
July - December
Total
2023
January - June
30%
2023
July - December
2024
January - June
2024
July - December
Total 12%

Administrative Rulemaking Proceedings

No administrative rulemaking proceedings found.

Topics Not Yet Assigned A Bill Or Rule Number

2023
January - June
2023
July - December
2024
January - June
2024
July - December
Total
2023
January - June
10%
2023
July - December
2024
January - June
2024
July - December
Total 4%
2023
January - June
2023
July - December
2024
January - June
2024
July - December
Total
2023
January - June
10%
2023
July - December
2024
January - June
2024
July - December
Total 4%

Minor Efforts

No minor efforts found.

Other Matters

No other matters found.

Filed Statements of Lobbying Activity and Expenditures