Everylife Foundation for Rare Diseases

Registered Principal Details

Business Or Interest:
Advancing newborn screening issues

Lobbying Interests:
Advancing newborn screening issues in the State.

Contact
DS
Dylan Simon
1012 14th NW, Suite 500
Washington , DC 20005
202-697-7273
dsimon@everylifefoundation.org
http://everylifefoundation.org

Authorized Lobbyists

Lobbyist Name Exclusive Duties Authorized On Withdrawn On
Bryan Brooks Exclusive Duties No Authorized On 1/8/2025 Withdrawn On N/A
Jeffrey Buhrandt Exclusive Duties No Authorized On 1/8/2025 Withdrawn On N/A
Jeff M Fitzgerald Exclusive Duties No Authorized On 1/8/2025 Withdrawn On N/A
Savannah Regali Exclusive Duties No Authorized On 1/8/2025 Withdrawn On N/A

Lobbying Interests

Topics Not Yet Assigned A Bill Or Rule Number

Newborn Screening Program
Development, drafting or introduction of a proposal relating to
Newborn Screening Program

Action Intended To Affect
Both Legislative matter and rule

Notification Date
1/8/2025
First Communication Date
N/A
Communication Information
The principal, a lobbyist authorized by the principal, or another individual acting on behalf of the principal do not intend to communicate on this matter.

Total Lobbying Effort

No certified reports found.

Percent Allocation of Lobbying Effort

Legislative Bills/Resolutions

No legislative bills/resolutions found.

Budget Bill Subjects

No budget bill subjects found.

Administrative Rulemaking Proceedings

No administrative rulemaking proceedings found.

Topics Not Yet Assigned A Bill Or Rule Number

No topics found.

Minor Efforts

No minor efforts found.

Other Matters

No other matters found.

Filed Statements of Lobbying Activity and Expenditures